May is mental health awareness month so let’s talk about the emotional effects of sickle cell anemia. This post was written by Akinbode Seyi, she also lives with sickle cell. I know living with sickle cell disease can be hard sometimes. Apart from the physical stress, there’s mental/emotional stress which can cause things like insecurities, […]
Do you know that there is always a life lesson or two to be learned in every situation of life? Well, I believe there is. And this also includes living with a chronic illness. Maybe living with a chronic illness isn’t all bad after all. There are some positive lessons to be learned in a […]
Parenting a child with sickle cell disorder is as tough as living with it. In this post, a mother shares what it is like caring for a child with sickle cell, running a sickle cell charity, and handling her career. Sickle cell disorder isn’t something anyone can prepare for. Typically, the whole family will at […]
According to statistics from Oberlo, Instagram is estimated to have over 1 billion users in 2021. That is almost 74 million users more than the figure in 2020. As an advocate of sickle cell disorder, I have always thought of the internet as a great tool for advocacy. Also, social media platforms like Instagram cannot […]
If there is a cure for sickle cell, does it change your genotype to AA or AS? Does it mean you won’t have to deal with sickle cell complications? There are so many questions that arise when we talk about a cure for sickle cell disease. I decided to learn everything I could about the […]
Can you live your best life with sickle cell disorder? Of course, we can. It’s no news that I was born with sickle cell disorder. A blood disorder that causes the red blood cells to become misshapen. The change in shape makes it difficult for the cells to move in the blood vessels which in […]
